Description
Introduction: Uganda has a highest fertility rate with 33% deliveries as preterm needing KC for survival, No community follow up program. Neonatal mortality rate being 35% . 80% of fathers run away. 3051 babies being followed
Background: The Preterm Infant Parents Network Uganda (PINU) is implementing Kangaroo Care (KMC), father involvement programs and follow up of preterm at home by development of the “Family-Led Care model” an effective way to enhance the health and development of preterm and very sick babies. This is done through: In the hospital(Service pathway) “strengthening KMC practices for preterm and LBW babies at 4 Health facilities through training health workers, engaging mothers and fathers plus other family members in the care of these preterm at the health facility Referral system- linking to the existing community structures, referral systems and strengthen the care by empowering families to continue then care at home, recognize and seek immediate care for danger signs and return to hospitals for follow up clinics. In the Home and Community(practices pathway)-peer to peer care groups encouraging families to return for facility-based follow up clinics, providing guidance, fathers supporting mothers with the care, monitoring the number of feeding, temperature, breathing and checking the danger signs
PIPNU implementation is within 2 National Referral Hospitals and 2 Lower Health Center HC IVs in Uganda.
Objective; To reduce 500 deaths weekly and 50% of the discharged babies that die at home due to lack of community-based follow-up programs.
Results
• 60 Village ambassadors has been identified-trained
• 12 virtual platforms for constant engagement
• PIPNU has had collaborations with Ministry Health Uganda and its partners in health with intension to leverage on the resources and reach out to as many as possible to health workers and preterm babies’ parents in 2 districts and 4 health facilities. We have collaborated with “ATTA” breast milk community in the establishments and distribution of safe, expressed breastmilk
• PIPNU using the Family-Led Care Model has enhanced provider with skills and quality of care within 4 KMC units and empower families to directly participate in the care.. This has seen increase in the % of documented mothers providing KMC at the 4 health facilities from 43% in July 2022 to now 98% by June 2023.
• The capacity building videos have been produced and distributed to health facilities
• Revitalized 4 KMC Work Improvement Teams using quality improvement methodology
• Community level reporting forms supporting M&E and the father care groups reporting monthly
• Built family confidence and an active link to the health system.
• PIPNU has provided monitoring forms for families to track number of feedings, monitor temperature and breathing, KMC knowledge, provision of supplements, form of breast feeding, HIV syrup, immunization, Retinopathy of prematurity and check for danger signs with father being the lead.
*Conclusions and Lessons Learnt*
The “Family-Led Care model” an effective way to enhance the health and development very sick and preterm babies while at home and increased father involvement from 34% to 52%
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