Description
This paper reports on the linguistic and cultural adaptation of Items of the National
Quality of Life Survey (NQLS 2018), which are included in a National Survey that
explores the availability of reasonable accommodation for Deaf users in a health care
setting as well as health care access. We document the cultural and linguistic
adaptation step-by-step, guided by a literature review, participatory group discussions
and qualitative testing. This research addresses the dearth of accessible research
instruments for D/deaf persons in low and middle-income countries. This lack of
accessible tools leads to double layers of exclusion, and data gaps often lead to
erroneous generalisations that do not accurately represent D/deaf populations.
Evidence gaps may result in poor service planning and inadequate policy-making. This
study contributes to good practices in interpretation, disability research and global
health.
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